Who we are
Our dream is to have an understanding and responsive society that ensures equal participation of persons with epilepsy in all aspects of life!
Our Success Youth on the Move works together with the government, churches, hospitals and other institutions in the awareness creation all over Kenya. We are delighted to have their contribution in mobilizing the community to gain knowledge about epilepsy and to learn how one can live beyond the condition. However, we think that the access to care needs to be improved. Therefore we ask you to sign our petition to the Government of Kenya to make epilepsy care affordable and available for all. So far, we have 10,000 signatures. Give yours as well!
Our Actions Our mission is to empower persons with epilepsy and ensure equal participation in society through lobby and awareness creation in partnership with stakeholders . We do this through various actions such as awareness creation, sharing of experiences and exercises. The youths also unite efforts in the work
An understanding and responsive society that ensures equal participation of persons with epilepsy in developing countries in all aspects of life.
To empower persons with epilepsy and ensure equal participation in society through lobby and awareness creation in partnership with stakeholders
There are many types of seizures with different manifestations including falling and jerking; only staring or fumbling with clothes and smacking lips
Seizures, or fits, spells, attacks, convulsions or spasms are sudden and temporary electrical disturbances in the brain which cause changes in sensation, awareness or behavior. Like Malaria, epilepsy cannot be cured but can be effectively controlled in most cases with anti-epileptic drugs prescribed by a doctor. Just like the seizures, epilepsy is quite varied. One person may live with epilepsy throughout their lives, but in many instances the person outgrow the condition.
For the prescribed drugs to be effective they need to be taken consistently and any change in the drug combinations or amount must be done in consultation with the doctor. Anyone can get the condition regardless of their country, their age, their social class or their religion. Most people with epilepsy can live an active life; work, go out and have a family as long as they take their medication as prescribed.
The degree to which people accept their epilepsy varies from person to person. Some people easily face it and learn to deal with it while others experience confusion
When the doctor informs you that you have epilepsy, a lot of questions might go through your mind Did they say epilepsy or leprosy? Am I going to die now? What did I do wrong? How can I get rid of this? Why me and not someone else? How can I hide this from others?
Understanding epilepsy is an important step in your effort to acknowledgeand accept the condition.
For this, you need knowledge about it. This can be given by the doctor, but you can also search for literature or ask other professionals to tell you more about it. Their information can reassure you that epilepsy is nothing to be ashamed of and that you can live beyond it. It is advisable for you to participate in trainings where you can share experiences and knowledge. This can be achieved at various epilepsy organizations that organize meetings for people with epilepsy. Once you have enough knowledge, you will understand how you can live an active life.
August 27th 2010 shall for ever remain one of the most memorable days in my life and I believe the same applies to many Kenyans
After a tough fifteen months of drafting and preparing the new Kenyan constitution, which Kenyans approved through a referendum earlier that month, the document that I had helped to churn out as a Member of the Committee of Experts for Constitutional Review (CoE) was indeed my country’s new constitution.
That day was very special to me. The day and the experiences leading up to it presented me with an ambivalence of emotions – great pride and distinction for being one of the Kenyan in the eleven member committee that provided stewardship during the successful writing process; and profound humility for the opportunity and support that Kenyans had accorded my colleagues and I during that journey.
The new Kenyan Constitution provided a fresh blueprint through which Kenyans could navigate themselves out of an old disappointing order to a new dispensation full of ambition, hope and fulfillment – a belief that many Kenyans had on that day as the president led the country in promulgating the new document. However for me, a voice of restraint and objectivity kept on whispering to the ear of my mind. It hauntingly said (and still does!) – this was the easy bit, a battle has been won but the war continues – bado mapambano!’